or


[02/09/09 - 02:19 PM]
National Organization for Rare Disorders to Partner with Discovery Health and "Mystery Diagnosis" for Rare Disease Day 2009
Rare Disease Day is "an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide."

[via press release from Discovery Health]

National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009

-- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 --

February 9, 2009

(Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

About NORD

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

About Mystery Diagnosis

MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers.

About Discovery Health

Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit www.discoverycommunications.com.





  [february 2009]  
S
M
T
W
T
F
S


· MYSTERY DIAGNOSIS (OWN)





[09/08/26 - 09:04 AM]
Terror on Tubi Continues with First Look Photos of "R.L. Stine's Pumpkinhead 2"
Cassandra Peterson, famously known as Elvira, joins Bean Reid and Adeline Lo in spooky sequel premiering October 9.

[09/08/26 - 09:01 AM]
AMC+ Debuts First Look at Final Season of "The Walking Dead: Daryl Dixon," Premiering in 2027
Emmy and Golden Globe Award-winner Jimmy Smits joins series stars Norman Reedus and Melissa McBride in the highly anticipated new season set in Spain.

[09/08/26 - 07:31 AM]
Video: Trick or Treat - Dexter's Back Paramount+ Announces "Dexter: Resurrection" Season 2 Premieres October 30 with Teaser
The second season finds Dexter Morgan (Michael C. Hall) caught between two killers - one with decades of notoriety and a lifetime of kills behind him, and the other a fresh young face terrorizing New York in ways no one has ever seen.

[09/08/26 - 07:01 AM]
Video: "4 Blocks Zero" - Official Trailer - HBO Max
The beginning you've never seen.

[09/08/26 - 07:01 AM]
Prime Video Doubles Down on Young Adult Programming with Biggest-Ever International Originals Slate Following Global Breakouts "Off Campus," "Culpables" and "Maxton Hall - The World Between Us"
To mark the moment, Prime Video hosted the Obsessed Retreat: Class of '26 (September 7-8), a two-day immersive event in the Bavarian Alps.

[09/08/26 - 03:01 AM]
"The Child" Is Coming to Netflix on November 27, Following Its Cinema Premiere on November 13
"The Child" tells the story of Mariaje (Belén Cuesta) and Nicasio (Karra Elejalde), the mother and grandfather of one of the children who died in a gas explosion in a town in the Basque Country in October 1980.

[09/08/26 - 02:54 AM]
Disney+ & ESPN Unveil Key Art for "Max vs 100", Live on September 16
The live event will see four-time Formula 1 World Champion and Oracle Red Bull Racing Driver Max Verstappen attempt to overtake 100 drivers at Silverstone, one of the sport's most iconic circuits.

[09/08/26 - 01:31 AM]
"Our Fault: London": First Look Images Released By Prime Video
"Our Fault: London," starring Asha Banks and Matthew Broome as the beloved Noah and Nick, will premiere exclusively on Prime Video in 2027 in more than 240 countries and territories around the world.

[09/08/26 - 01:21 AM]
Prime Video Releases First Official Images from "Boys of Tommen"
"Boys of Tommen" follows the forbidden love story of Johnny Kavanagh, the star rugby player on the verge of a pro career, and Shannon Lynch, the talented but painfully shy new girl at the prestigious private school of Tommen College in Ballylaggin, Ireland.

[09/08/26 - 12:01 AM]
Video: "Less of a Stranger" - Official Trailer - Netflix
As the leader of Polish rock band Lady Pank, Jan Borysewicz shapes a generation with his music - while a string of family tragedies shapes him.

[09/07/26 - 08:01 PM]
Video: "Mononoke The Movie: Chapter III - The Curse of the Serpent" - Official Trailer #2 - Netflix
When tragedy strikes within the walls of the Ooku, twisted human passions and festering grudges spawn the Medicine Seller's most fearsome opponent yet.

[09/07/26 - 05:01 PM]
Video: "The Scandal" - Official Trailer - Netflix
In Joseon, a secret proposal ignites hidden desires in a gifted noblewoman, a famed lover and an unsuspecting lady caught in their dangerous game.

[09/07/26 - 07:01 AM]
"Beyond Society", The Documentary Series Created by J.A. Bayona and Carlos Torres, Arrives on Netflix on December 18
The rescue was only the beginning, but what came after deserves to be told too.

[09/07/26 - 01:31 AM]
Four Acclaimed Directors, Four New Stories: Emmy Nominated Anthology Film Franchise "Lust Stories" Unveils Third Installment, Premieres September 18 on Netflix
Vikramaditya Motwane, Kiran Rao, Shakun Batra, and Vishal Bhardwaj are among the featured directors.

[09/07/26 - 01:01 AM]
Netflix Announces That Production Begins Today in the UK on Feature Film "The Inbetweeners 3", A Continuation of the Hugely Popular Sitcom and Its Two Record-Breaking Films
Simon Bird, James Buckley, Blake Harrison and Joe Thomas will reprise their roles as Will McKenzie, Jay Cartwright, Neil Sutherland and Simon Cooper.