or


[02/09/09 - 02:19 PM]
National Organization for Rare Disorders to Partner with Discovery Health and "Mystery Diagnosis" for Rare Disease Day 2009
Rare Disease Day is "an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide."

[via press release from Discovery Health]

National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009

-- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 --

February 9, 2009

(Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

About NORD

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

About Mystery Diagnosis

MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers.

About Discovery Health

Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit www.discoverycommunications.com.





  [february 2009]  
S
M
T
W
T
F
S


· MYSTERY DIAGNOSIS (OWN)









[04/25/15 - 08:42 AM]
"Grimm" Is Steady Week to Week in Adults 18-49, Grows in Men and Women 18-49, Adults, Men and Women 25-54 and Total Viewers
NBC spins the numbers for Friday, April 24.

[04/25/15 - 08:40 AM]
"20/20: Bruce Jenner - The Interview" Draws 16.9 Million on Friday - Biggest "20/20" in 15 Years
ABC spins the numbers for Friday, April 24.

[04/25/15 - 08:33 AM]
Friday's Broadcast Ratings: "Bruce Jenner - The Interview" Posts Big Numbers for ABC
Nearly 17 million viewers on average tune into the two-hour special.

[04/24/15 - 11:33 PM]
Development Update: Friday, April 24
Updates include: Brooklyn Sudano joins Hulu's "11/22/63"; Disney Channel adds trio to "Jessie" spin-off; and Danielle Sanchez-Witzel to run NBC's "The Carmichael Show."

[04/24/15 - 07:43 PM]
E! Announces New Documentary Series Following Bruce Jenner's Life as a Transgender Woman
The eight-part, one-hour series will premiere Sunday, July 26 at 9:00pm on E! and will also air on the E! channels internationally.

[04/24/15 - 04:25 PM]
Oscar(R) Nominee and Multiple Tony(R) Winner Frank Langella to Return to FX's Peabody Award-Winning Drama "The Americans"
Langella will reprise his role as "Gabriel," Philip and Elizabeth's mysterious KGB handler.

[04/24/15 - 03:05 PM]
Whipclip Teams Up with Pop to Offer Fans Easy Access to Create and Share Video Clips from Network's Original Programming Line-Up
Using Whipclip, viewers can create customized clips of their favorite moments and share them instantly on Facebook, Twitter, Tumblr, Pinterest and via email and SMS.

[04/24/15 - 12:48 PM]
Discovery Channel Renews Hit-Series "Deadliest Catch" for Twelfth Season
From Original Productions, the 13-time Emmy Award-winning series follows the real-life adventures of Alaskan fisherman with one of the most dangerous jobs in the world - crab fishing on the unpredictable Bering Sea.

[04/24/15 - 12:43 PM]
FOX Sports 1 Presents First Ever "U.S. Open Media Day Special"
Originating from the United States Golf Association's Media Day at Chambers Bay, the program, recorded earlier in the day, airs in primetime Monday, April 27, (9:30 PM ET) on FOX Sports 1.

[04/24/15 - 12:32 PM]
Discovery Channel Grabs #1 in Both Persons 25-54 and Persons 18-49 on Cable for the Week
Discovery spins the numbers for the week of April 13-19.

[04/24/15 - 11:17 AM]
"Garbage Time with Katie Nolan" Attracts Largest Audience Ever with Total Viewership Over 1.6 Million
FOX Sports further spins the numbers for Sunday, April 19.

[04/24/15 - 10:35 AM]
Meet the New Class of Students on "Are You Smarter Than a 5th Grader?"
Following a nationwide search, these six kids were chosen to help the grown-ups graduate toward the top prize of $1 million.

[04/24/15 - 10:31 AM]
Live + 3 Day Ratings: ABC's "Once Upon a Time" Emerges at Sunday's Top Broadcast Series
ABC further spins the numbers for Sunday, April 19.

[04/24/15 - 10:26 AM]
Evan Peters the Latest "American Horror Story" Veteran to Join "Hotel"
Lady Gaga, Kathy Bates, Sarah Paulson, Matt Bomer, Cheyenne Jackson, Wes Bentley and Chloƫ Sevigny also star in the latest installment, due in October.

[04/24/15 - 10:11 AM]
"Thought Crimes: The Case of the Cannibal Cop," Featuring Exclusive Access to Former NYPD Officer Gilberto Valle, Explores Issues of Crime in the Internet Age When It Debuts May 11 on HBO
Dubbed "The Cannibal Cop," former NYPD officer Gilberto Valle was convicted of conspiring to kidnap and eat women in March 2013.