or


[02/09/09 - 02:19 PM]
National Organization for Rare Disorders to Partner with Discovery Health and "Mystery Diagnosis" for Rare Disease Day 2009
Rare Disease Day is "an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide."

[via press release from Discovery Health]

National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009

-- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 --

February 9, 2009

(Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

About NORD

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

About Mystery Diagnosis

MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers.

About Discovery Health

Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit www.discoverycommunications.com.





  [february 2009]  
S
M
T
W
T
F
S


· MYSTERY DIAGNOSIS (OWN)





[10/01/26 - 12:16 PM]
UPtv to Premiere "Big Bridal Giveaway" Oct. 3
In "Big Bridal Giveaway," wedding dreams come true when deserving brides-to-be trust a team of romcom movie stylists to transform them into the radiant brides they've always envisioned.

[10/01/26 - 12:16 PM]
Comedy Central Announces Premiere Date for Season Four of "Mike Judge's Beavis and Butt-Head"
Season four will premiere on Wednesday, October 14 at 10:30pm ET/PT with 12 episodes.

[10/01/26 - 11:48 AM]
Sherri Shepherd Joins Lifetime's Annual "Stop Breast Cancer for Life" Campaign with New PSA in Support of the Breast Cancer Research Foundation
Shepherd who brings her signature warmth and candor to a message about the importance of knowing your risk, prioritizing screening and advocating for your health.

[10/01/26 - 11:46 AM]
Video: "9-1-1" - Season 10 Official Trailer
LA-LA Land doesn't have a protocol for LA-VA Land...

[10/01/26 - 11:12 AM]
BET Names Anthony Anderson Host of Soul Train Awards 2026
Returning to the BET stage, Anderson will lead an unforgettable celebration of the artists, music, and enduring cultural legacy of the iconic "Soul Train" franchise, with a night of performances, tributes, and honors.

[10/01/26 - 11:09 AM]
Video: "9-1-1: Nashville" - Season 2 Official Trailer
Watch your back 113.

[10/01/26 - 10:40 AM]
FOX Nation Strikes Deal with Supermodel Christie Brinkley for Docuseries "Uptown Girl: The Christie Brinkley Story" Coming 2027
Comprised of three one-hour episodes, the intimate series offers a revealing first-person portrait of the woman behind one of the most recognizable faces in pop culture, whose extraordinary life has played out in the public eye for more than five decades.

[10/01/26 - 10:31 AM]
Prime Video Renews Hit Series "Neagley" for a Second Season
Amazon MGM Studios confirmed the news on social media this morning.

[10/01/26 - 10:08 AM]
CBS Conjures Up Halloween Fun in Primetime and Daytime
Highlights include the one-hour "Ghosts" special event.

[10/01/26 - 10:01 AM]
Award-Winning Presenter Rebecca Lowe Joins Netflix's Broadcast Team for the FIFA Women's World Cup 2027
The addition marks another milestone for Netflix's historic coverage of the tournament, which will feature English and Spanish-language broadcasts in the United States, and English and French-language broadcasts in Canada.

[10/01/26 - 10:01 AM]
Video: NBC Debuts Official Trailer & Key Art for "Newlyweds"
"Newlyweds" is a later-in-life love story about Jeanie (Téa Leoni), a free-spirited woman, and James (Tim Daly), a buttoned-up professor, who marry impetuously after a whirlwind courtship.

[10/01/26 - 09:39 AM]
Emmy Award-Winning "Ask This Old House" Celebrates 25th Anniversary of Building Confident Homeowners - New Season Premieres Thursday, October 1
The Emmy Award-winning series helps homeowners solve real home improvement problems with trusted, practical advice from some of the most experienced experts in the trades.

[10/01/26 - 09:32 AM]
"Shrinking" Season 4 Adds Judith Light and Scott Foley to the Cast
These two are in good company.

[10/01/26 - 09:10 AM]
ESPN Announces 2026-27 "Inside the NBA Presented by Eli Lilly" Regular Season Schedule
The schedule begins with coverage of NBA Opening Week on October 21 and 22 and continues weekly throughout the season's first four weeks, giving fans an early-season destination alongside ESPN's NBA coverage.

[10/01/26 - 09:01 AM]
HBO Max Celebrates Halloween 2026 with "Horror Comes Home" Collection
Available today and throughout October, viewers can explore a best-in-class lineup of acclaimed new releases, blockbuster franchises, genre-defining classics, and exclusive titles, delivering a month of unforgettable scares.