or


[02/09/09 - 02:19 PM]
National Organization for Rare Disorders to Partner with Discovery Health and "Mystery Diagnosis" for Rare Disease Day 2009
Rare Disease Day is "an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide."

[via press release from Discovery Health]

National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009

-- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 --

February 9, 2009

(Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

About NORD

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

About Mystery Diagnosis

MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers.

About Discovery Health

Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit www.discoverycommunications.com.





  [february 2009]  
S
M
T
W
T
F
S


· MYSTERY DIAGNOSIS (OWN)





[05/26/17 - 12:31 PM]
Senators-Penguins Game 7 Double-OT Thriller on NBCSN Averages More Than 3 Million Viewers
NBCSN spins the numbers for Thursday, May 25.

[05/26/17 - 10:01 AM]
Disney XD's "Star vs. The Forces of Evil" Two-Hour TV Movie Event to Premiere Saturday, July 15
Season three of the fan-favorite and Annie Award-nominated series is slated to debut this fall.

[05/26/17 - 09:07 AM]
"Into the Badlands" Closes Its Second Season as a Top Scripted Series on Cable
AMC further spins the numbers for the series to date.

[05/26/17 - 08:36 AM]
NBC's 10 P.M. "The Red Nose Day Special" #1 in Timeslot in 18-49 and Improves on Last Year's Telecast by 40% in Demo and 27% in Total Viewers
NBC spins the numbers for Thursday, May 25.

[05/25/17 - 11:55 PM]
3rd Annual Red Nose Day Raises Over $35 Million for Children in Need, Top Stars Join NBC's Night of Red Nose Day Programming & Live Special
The donation total was calculated after the broadcast finished airing on the West Coast.

[05/25/17 - 03:59 PM]
Video: Netflix Reveals Trailer and Key Art for CounterPunch
The film brings to light the true stories of a number of young boxers determined not only to turn around the fate of the industry, but to also make sure their names end up in the firmament alongside the most remembered and revered champions.

[05/25/17 - 03:50 PM]
Top Ninja Warriors Will Show Off Their Strength on NBC's Annual Three-Hour Special "USA vs. The World" Airing Sunday, June 4 (8-11 PM ET/PT)
Matt Iseman and Akbar Gbajabiamila are set to host and Kristine Leahy will co-host.

[05/25/17 - 02:36 PM]
ABC Wins Its 4th Consecutive May in Adults 18-49, Delivering Its Longest Winning Streak for the Sweep in Over 25 Years
ABC further spins the numbers for the May sweeps period.

[05/25/17 - 02:32 PM]
Production Team for "69th Primetime Emmys" Announced
Glenn Weiss and Ricky Kirshner of White Cherry Entertainment will executive produce this year's telecast.

[05/25/17 - 01:27 PM]
Video: First Look at Ludacris in MTV's "Fear Factor"
The series returns this Tuesday, May 30 at 10:00/9:00c.

[05/25/17 - 11:59 AM]
Rubber Hits the Road on the New Season of CNBC's "Jay Leno's Garage" Premiering Wednesday, June 28th
Celebrity guests this season include President George W. Bush and Laura Bush, Ted Koppel, Wanda Sykes, Michael Strahan, Brad Garrett, Josh Duhamel, J. B. Smoove, among others.

[05/25/17 - 10:59 AM]
History Orders Robert Zemeckis Scripted Drama Series "Blue Book"
"Blue Book" chronicles the true top secret United States Air Force-sponsored investigations into UFO-related phenomena in the 1950's and 60's known as "Project Blue Book."

[05/25/17 - 10:46 AM]
Summer Is Blazing Hot with "Teen Choice 2017" Live Sunday, August 13, on FOX
For 19 years, the special has presented performances and appearances by some of pop culture's brightest stars.

[05/25/17 - 10:30 AM]
The Avengers Return for an Action-Packed One-Hour "Marvel's Avengers: Secret Wars" Season Four Premiere on Saturday, June 17, on Disney XD
Picking up right after the events of season three "Ultron Revolution," the fourth season finds Tony Stark trapped in another dimension.

[05/25/17 - 10:04 AM]
"Legends of Chamberlain Heights" Returns for Season Two on Sunday, June 18 at 11:30 P.M. ET/PT on Comedy Central
"Legends of Chamberlain Heights" is an urban animated series mixing raucous comedy and social commentary that centers on three high school freshman basketball benchwarmers.