or


[02/09/09 - 02:19 PM]
National Organization for Rare Disorders to Partner with Discovery Health and "Mystery Diagnosis" for Rare Disease Day 2009
Rare Disease Day is "an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide."

[via press release from Discovery Health]

National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009

-- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 --

February 9, 2009

(Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com.

Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions.

Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease.

"Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them."

This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org.

About NORD

Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community.

About Mystery Diagnosis

MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers.

About Discovery Health

Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit www.discoverycommunications.com.





  [february 2009]  
S
M
T
W
T
F
S


· MYSTERY DIAGNOSIS (OWN)











[10/20/14 - 03:29 PM]
"Gold Rush" Season Five Premiere Tops Cable Television on Friday
Discovery spins the numbers for Friday, October 17.

[10/20/14 - 02:02 PM]
John Ondrasik of Five for Fighting to Perform Original Song for 100th Episode Of "Hawaii Five-0," Nov. 7
The song, titled "All For One," will premiere during the broadcast of the milestone episode.

[10/20/14 - 01:20 PM]
CMT's Highest-Rated Series Ever "Party Down South" Keeps the Party Going This Holiday Season with Two All-New, One-Hour Specials
"Party Down South: Drunksgiving" airs Thursday, November 20 followed by "Party Down South: Christmas Hangover" on Thursday, December 18.

[10/20/14 - 01:19 PM]
HGTV and DIY Network Greenlight Seven New Series
"America's Most Desperate Kitchens," "Log Cabin Living," "Shalina Joy Project" and "Real Estate Riches" are on tap at the former while "First Time Flippers," "Miami Rehab" and "The Treehouse Guys" are coming to the latter.

[10/20/14 - 12:42 PM]
Discovery Fit & Health Pulls Back the White Curtain on Outrageous Medical Emergencies When "Untold Stories of the ER" Returns with the Craziest Cases Special and 100th Episode
The 100th episode kicks off all-new episodes, beginning Friday, November 14 at 10:00/9:00c.

[10/20/14 - 12:22 PM]
Three Families Are "Risking It All" for a Life Off the Grid
TLC's latest original series premieres Tuesday, November 18 at 10:00/9:00c.

[10/20/14 - 12:22 PM]
"Real World: Skeletons" Set to Premiere December 16, 2014 at 10:00 PM ET/PT on MTV
This season, the series begins in the traditional way with seven strangers moving into an old nightclub turned fabulous urban loft in Chicago's West Loop, but each of these roommates has skeletons in their closets.

[10/20/14 - 12:18 PM]
USA Network Orders Third Season of Breakout Comedic Reality Series "Chrisley Knows Best"
Plus: look for a half-hour "Chrisley" holiday special set for this December.

[10/20/14 - 12:10 PM]
Ariana Grande and Meghan Trainor to Perform Duets with Top Country Acts on "The 48th Annual CMA Awards"
Grande will be joining two-time CMA Vocal Group of the Year Little Big Town for an on-air collaboration.

[10/20/14 - 11:51 AM]
ABC Family Invites Fans to Tweet the "Dearly Departed" During a Halloween Special of "Pretty Little Liars," Airing Tuesday, October 21
Janel Parrish ("Mona"), Andrea Parker ("Mrs. DiLaurentis") and Bryce Johnson ("Det. Darren Wilden") will live tweet with fans during the East Coast broadcast.

[10/20/14 - 11:49 AM]
"Untold with Maria Menounos" Premieres Thursday, October 30th at 8:00PM ET/PT
The series takes a closer look at two major entertainment stories that are making headlines today: the Transgender movement and Depression in Comedians.

[10/20/14 - 11:06 AM]
Live + 7 Ratings: ABC's "How to Get Away with Murder" Is the Week's #1 Biggest Gainer in TV Playback in Adults 18-49
ABC further spins the numbers for the week of September 29-October 5.

[10/20/14 - 11:04 AM]
A Wedding, a Breakup and a Divorce?! Don't Miss the "Total Divas" Mid-Season Finale Sunday, October 26 at 9pm ET on E!
Plus: WWE(R) Diva Alicia Fox(TM) and WWE Diva Paige(TM) joint the cast when new episodes resume Sunday, January 4 at 10:00/9:00c.

[10/20/14 - 10:55 AM]
CBS Freshman Dramas Post Strong Second-Week Live +7-Day Lifts
CBS further spins the numbers for the week of September 29-October 5.

[10/20/14 - 10:40 AM]
Pizza Aficionados Sal Basille and Francis Garcia Return to Travel the Country on a Culinary Expedition in Cooking Channel's "Pizza Masters"
The six-episode series launches Friday, December 5 at 9:00/8:00c on the network.